Privacy Policy

Privacy Policy – FEDERATE-Can Project

The FEDERATE‑Can project is a research study conducted at the Institut de recherches cliniques de Montréal (IRCM). As part of our research activities, we may collect certain personal information in accordance with applicable privacy legislation. This policy describes our practices for collecting, using, disclosing, retaining, and protecting personal information shared through the FEDERATE‑Can project website or during interactions related to the project.

1. What personal information do we collect?

We may collect the following information when you interact with the website or the project team:

  • first and last name
  • email address
  • phone number
  • any information voluntarily provided in the contact request
  • any information you provide when expressing interest in participating in the study

If you later consent to officially participate in the FEDERATE‑Can research project, the collection of additional personal information will be governed by the research information and consent form approved by the IRCM Research Ethics Board.

2. How do we collect this information?

We collect your personal information:

  • when you complete our form on the website (e.g., contact form);
  • when you contact us directly by email or telephone;
  • when you express interest in participating in the FEDERATE‑Can study.

The website may also collect technical browsing data (e.g., browser type, IP address, pages visited). For more information, please consult our Terms of Use.

If you are redirected to an external appointment-scheduling platform, the personal information you provide may also be subject to the privacy policy of that service provider.

3. How do we use your personal information?

We use your personal information only for the following purposes:

  • responding to your questions or information requests;
  • contacting you if you have expressed interest in the study;
  • providing information about the FEDERATE‑Can project;
  • assessing your potential eligibility for the project, if requested;
  • meeting our ethical and regulatory obligations related to research activities.

If you officially become a participant in the study, any information related to your participation will be used in accordance with the research information and consent form you sign.

4. With whom do we share your information?

Your personal information may be shared only with authorized members of the FEDERATE‑Can research team. No information is sold or disclosed to third parties for commercial purposes.
Certain service providers (such as website hosting providers or technical service providers) may also have access to limited information when necessary for the operation of the website or the management of requests.

5. Protection and retention of information

We implement administrative, technological, and physical safeguards to protect your personal information from loss, unauthorized access, or disclosure. Information is retained only for the time necessary to fulfill the purposes for which it was collected or as required by applicable legal or regulatory obligations. When the information is no longer needed, it is destroyed or anonymized according to IRCM practices.

6. Your rights

In accordance with the law, you have the right to:

  • access your personal information;
  • request the correction of incomplete or inaccurate information;
  • withdraw your consent to the use or disclosure of your personal information, when applicable.

To exercise these rights, you may contact the IRCM Privacy Officer using the contact information provided below.

7. Cookies

For information about the use of cookies and technical browsing data, please consult our Terms of Use.

8. Links to external websites

Our site may contain links to other websites. These sites have their own privacy policies, and we are not responsible for their practices.

9. How to contact us ?

For any questions regarding this policy or to exercise your rights, you may contact the IRCM Privacy Officer at: [email protected]

10. Policy updates

This policy may be updated to reflect changes in our practices or legal requirements. Any modifications will be posted on this page.
Last updated: March 2026.